Share your story
Understanding the lived and living experiences of young
people
who take benzos in
Scotland
Understanding the lived and living experiences of young
people
who take benzos in
Scotland
You are being invited to take part in some research. Before you decide
whether or not to participate, it is important for you to understand why the
research is being conducted and what it will involve. Please read the
following information carefully.
1. What is the purpose of the research?
The purpose of our research is to collect stories of young people who have
experienced non-medical, non-prescription benzo use to better understand
your experiences. We want to listen to your lived and learned knowledge and
advocate for changes that need to be made in the support, information and
education around benzos for young people in Scotland. We feel there is a gap
in knowledge and understanding of Scottish young people's experiences, and
want to ensure your voice is heard.
2. Who is carrying out the research?
We are the Benzo Research Project (BRP), a grassroots small charity run by
young people volunteering from across the globe, including those who have
lived/living experience of taking drugs. With this research, we aim to
improve the lives of young people who take benzos in Scotland. We work to
promote harm reduction, advocacy and safety for young people who take
benzos, without stigma.
This project is carried out with support from Crew2000, a Scottish harm
reduction charity based in Edinburgh, under the supervision of Dr. Karenza Moore, a
Reader
in Sociology and experienced drugs researcher at Newcastle
University. The research has been approved by Newcastle
University Research Ethics Committee (ref. 65006).
3. What happens if I agree to take part?
Once you have read this information, if you agree to participate in the
research you will be shown a series of question prompts, asking about your
experiences of benzo use. After completing this, you will be asked some
optional questions about your age, gender and the city/town you are closest
to. Upon completion and submission of your testimony, you will be shown a
bit more information about the research, how you could contribute further,
and provided with contacts for support services in case the content of your
submission was upsetting.
4. Are there any risks associated with taking part?
Participating in the research may pose a risk to your mental health if you
find talking about your experiences of benzo taking upsetting, triggering,
or if revisiting events of the past brings up bad memories. If this occurs,
before, during or after writing your submission, please use the support
resources and helplines recommended on the final page of submission to seek
support. You are also encouraged to only share what you are comfortable
with, with the reassurance that all submissions are anonymous.
5. Data Protection and Confidentiality
All testimony data will be collected through a webform on our website
(https://brp.org.uk) and sent end-to-end encrypted to a secure SQL database
on Cloudflare, accessible only by the Project Lead. Any personal/identifying
information will be removed, and consenting participants’ anonymous
testimonies will be published on our website. At the end of the data
collection period, all data will be transferred to our password-protected
Google Drive for analysis.
All anonymised data will be stored and backed up on a password-protected
online drive, avoiding the loss, misuse, alteration or destruction of said
data. It will not be permitted to download any research data to a personal
computer for long-term storage. The open testimonial submissions will be
accessible only by the Supervisor, Project Lead, Research Assistants and the
Crew representative(s).
Furthermore, third-parties authorised to access the research data collected
by the BRP will only occur upon approval by the Trustee Board, and once a
valid data sharing agreement is put in place between the BRP and the third
party organisation. Furthermore, sharing research data to external
individuals will be prohibited.
External research data sharing will be minimised, and only conducted if
there is not a suitable alternative. Alternatives to sharing BRP datasets
may include; presenting key or emerging findings in a virtual meeting to a
third party representative; sharing a confidential preliminary report
detailing top-level or relevant insights from data analysis, or sharing
relevant previous publications by the BRP or other reputable sources.
6. What will happen to the information I provide?
Our project lead (aj@brp.org.uk) will anonymise the information you have
shared, so no one can identify that it was you who submitted it, in order to
protect your privacy. The anonymised testimony will be kept on a secure
online drive, and will be analysed by our research assistants alongside the
other testimony submissions. Anonymised testimonies from consenting
participants will be shared on our story-sharing platform here:
brp.org.uk/testimonies
7. Is participation voluntary and what if I wish to later withdraw?
Participation is completely voluntary and you do not have to
participate in
this research if you do not wish to do so. If you wish to withdraw the
information you provide, you can do this at any time before submitting by
leaving the website. Withdrawing before submission will have no negative
consequences. Unfortunately, due to the anonymous nature of the study, we
are unable to withdraw your testimony after you submit.
8. Data Protection Privacy Notice
How long will your information be held?
Following Newcastle University guidance, the data will be kept in the form
of text documents (.docx) for use by the team of researchers for a period of
up to 10 years after the end of research.
What are your rights?
You have a right to access your personal information, to object to the
processing of your personal information, to rectify, to erase, to restrict
and to port your personal information.
Please visit the University Data Protection webpages for further information
in relation to your rights. Any requests or objections should be made in
writing to the University Data Protection Officer:
Executive Office,
Newcastle University,
Newcastle upon Tyne,
NE1 7RU.
Email: rec-man@ncl.ac.uk
How to make a complaint
If you would like to make a complaint, please contact the Trustee Board:
trustees@brp.org.uk
9. What if I have other questions?
If you have further questions about this study, please do not hesitate to
contact us: research@brp.org.uk